I was diagnosed with PANDAS syndrome I often run low grade fevers, have fatigue, and chills?

I am 18 years old, female, 5’1, 106lbs. I was diagnosed with PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated With Streptococcal Infections) in 2012. I keep getting strep, I had it at the end of November and I was diagnosed with it again at the end of January. I know I’m not reinfecting myself because I changed my tooth brush, sheets, and washed all my clothes. It took me over a week for my fever to break and I have bad mild chest pressure. I keep getting tonsil stones the size of peas. When I don’t have strep I often run low grade fevers, have fatigue, and chills. I do have a history of throat problems. Please advise?

4 Comments on “I was diagnosed with PANDAS syndrome I often run low grade fevers, have fatigue, and chills?

  1. Hi
    You are saying you do not have Streptococcal Infection , yet all your symptoms suggest you do, I recommend focusing on vitamin c supplements, avoid sugar, avoid talking in open air, also a long term low-dose antibiotic is recommended

    Ask your doctor if he thinks Aldesleukin can be used in very low doses ( dangerous drug do not use unless your doctor agree with it)

    Good Luck

  2. Have you tried antibiotics initially? What are they?

    antibiotics should be tried before initiating IVIG or other immunomodulatory therapy. Prophylactic antibiotics are often useful in the management of PANDAS, as they help to prevent strep-triggered exacerbations.
    Cognitive behavior therapy should be started as soon you can if you were diagnosed with any type of associated psychological disorder..

  3. hi,
    PANDAS takes time to heal up and needs support from your own immune system (active immunity).
    Only taking antibiotics won’t help you and will keep causing recurrent episodes of fever and infections.
    Start on broad spectrum antibiotics along with vitamin C and protein supplements.
    Get complete hemogram with thyroid assay and electrolytes done.

  4. Why did not u go for tonsillectomy.. ?
    Also try fo strengthen ur immunity
    Take vits, healthy food..

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