I was diagnosed about 10+ years ago with intractable migraines?

I was diagnosed about 10+ years ago with intractable migraines. I go through periods of having daily migraines and then sometimes for awhile the migraines are less severe and less frequent.

Some of my migraines are more ‘traditional’ in terms of being painful/nausea/vomiting/blurred vision

Other times I have migraines that caused passing out, one sided vision loss, slurred speech, numbness down one side (I may have all or some of these symptoms). MRI has ruled out more serious causes.

Do you know anything of this type of migraine? Preventatives and such have failed. I don’t take pain medication for them or anything of that nature?

I have other conditions: Systemic Lupus, Hermansky Pudlak Syndrome and hypertension

Age:37 Female
Medications: Topamax, Gabapentin

3 Comments on “I was diagnosed about 10+ years ago with intractable migraines?

  1. Hi..
    Thanks for the query..

    All the symptoms that you are facing are not all probably due to Status Migranous or Intractable Migraine and is appearing to be the combination of the other medical conditions..

    But still you need to once consult a Neurophysician and get a thorough examination done..

    Please upload your MRI report so that I can guide you better..


  2. I am posting some test results as requested and will do so below. Also I was diagnosed with Basilar migraines-not sure if they are the cause of any of this.

    I am sorry I do not have the images to uplaod, just the report.

    This is from my most recent MRI with Contrast

    Multi-planar, multi-sequence, magnetic resonance imaging of the brain was performed before and after the administration of intravenous contrast.

    Diffusion-weighted sequence shows no restricted diffusion suspicious for acute ischemia. Expected intracranial arterial and dural venous sinus flow voids are present. No abnormal susceptibility artifactsuspicious for prior hemorrhage is noted on the gradient recalled echo sequence. Post-contrast sequences showno abnormal enhancement except for an incidental prominent right frontal developmental venous anomaly without cavernous malformation. No space-occupying mass, hemorrhage, brain edema, midline shift, hydrocephalus, or extra-axial collection. Unremarkable brainstem.

    Otherwise, the brain shows normal morphology and volume for age. No focal parenchymal lesions are identified. The pituitary gland, corpus callosum, pineal region, brain stem, cerebellum, and craniocervical junction are normal. No significant paranasal sinus disease. Mastoids air cells are clear. Orbits are unremarkable. Incidental 6 mm Tornwaldt cyst of the nasopharynx. The skull-base and craniovertebral junction are unremarkable.

    1. No extra-axial collection, hydrocephalus, midline shift or detectable mass.
    2. No intraparenchymal hemorrhage or recent infarct.
    3. No abnormal intracranial enhancement ; incidental right frontal developmental venous anomaly without cavernous malformation.


    Results from abdomen/pelvis CT
    DATE and TIME: 8/1/2017 5:26 pm

    CLINICAL INFORMATION: intractable nausea
    Oral Contrast: Oral contrast was not administered.
    IV Contrast: IV contrast was used.
    Abdomen/Pelvis: With intravenous contrast
    Abdominal ultrasound dated 07/28/2017. CT abdomen/pelvis dated 05/20/2016.
    HEART(visualized): Unremarkable
    LUNG BASES: Dependent atelectasis.


    LIVER: Hepatic steatosis.
    BILE DUCTS: No ductal dilation.
    GALLBLADDER: Cholelithiasis. No pericholecystic fluid.
    PANCREAS: Unremarkable
    SPLEEN: Unremarkable
    ADRENALS: Unremarkable
    KIDNEYS/URETERS: Kidneys enhance symmetrically. No hydroureteronephrosis bilaterally. There is a left renal lower pole cyst. Right renal lower pole too small to characterize hypodensity.
    BLADDER: Unremarkable
    BOWEL: Bowel is normal in caliber. No bowel wall thickening.
    LYMPH NODES: There are multiple mildly prominent but nonenlarged mesenteric lymph nodes.
    VESSELS: Unremarkable
    REPRODUCTIVE ORGANS: Status post hysterectomy. Ovaries are within normal limits.
    PERITONEUM/RETROPERITONEUM: No ascites, free air, or fluid collections.
    ABDOMINAL WALL/SOFT TISSUES: Tiny fat containing umbilical hernia.
    BONES: Multilevel degenerative changes of the spine
    Celiac: Patent. Conventional anatomy. There is a 11 x 7 x 8 mm narrow neck aneurysm arising from a splenic artery branch.


    Holter Monitor Report

    REASON FOR STUDY: Please refer to link for reason for study CONCLUSIONS: Good quality tracing. Basic rhythm sinus. Frequent palpitations and three unspecified events. Most correlated with supraventricular regular rhythm of 177 beats per minute although one event occured with sinus rhythm and one withsinus thachycardia. I think the fast rhythm is SVT but cannot exclude sinus tachycardia. No other abnormalities noted. Hookup Date: 20040325 Hookup Time: 144455 Recording Duration: 233700 # OF QRS COMPLEXES: 152487 VENTRICULAR ECTOPY : # OF VENTRICULAR ECTOPICS: 1 # OF VENTRICULAR ISOLATED BEATS: 1 # OF VENTRICULAR BIGEMINAL CYCLES: 0 # OF VENTRICULAR COUPLETS: 0 # OF VENTRICULAR RUNS: 0 # OF VENTRICULAR BEATS IN RUNS: 0 SUPRAVENTRICULAR ECTOPY : # OF SUPRAVENTRICULAR ECTOPICS: 0 # OF SUPRAVENTRICULAR ISOLATED BEATS: 0 # OF SUPRAVENTRICULAR COUPLETS: 0 # OF SUPRAVENTRICULAR RUNS: 0 # OF SUPRAVENTRICULAR BEATS IN RUNS: 0 Avg. Heart Rate: 108 Maximum Heart Rate: 177 BPM Minimum Heart Rate: 74 BPMMax. ST Dev. Level (ch.1): 2 Min. ST Dev. Level (ch.1): -20 Max. ST Dev. Level (ch.2): 6 Min. ST Dev. Level (ch.2): -4 Max. ST Dev. Level (ch.3): -128 Min. ST Dev. Level (ch.3): -128 LONGEST RR: 0.880 sec # OF PACED QRS COMPLEXES: 0


    EKG Results

    Normal sinus rhythm
    Anterior infarct
    ST & T wave abnormality, consider inferolateral ischemia
    When compared with ECG of 31-JUL-2017 11:43,
    No significant change was found

    Ventricular Rate: 95
    Atrial Rate: 95
    PR Interval: 160
    QRS Duration: 88
    QT/QTc: 340/427 ms
    P-R-T Axis: 43 : 22 : -42 degrees


    *I am diagnosed with:

    Hermansky Pudlak Syndrome
    Systemic Lupus
    Chronic Hypertension

    Avm (arteriovenous Malformation)’
    Spleenic Artery Aneurysm

  3. Hi..
    Get checked for the side effect of medication also..
    Your diagnosis is appearing to be due to a combination of causes..
    So a symptomatic approach of treatment should be done followed by followup to see if the symptoms improve..


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