I am convinced I have Celiacs, Is there another way I can seek a diagnosis?
I am convinced that I have Celiacs disease but I’m not sure how to go forward. I have temporal lobe epilepsy and I have had digestive issues my entire life. 2 years ago I cut gluten out of my diet and my epilepsy symptoms vanished, I kept an epilepsy diary and confirmed that whenever I ate gluten I had a seizure in the next 2 days. For the past year I have been gluten free and had only 2 seizures during the same period when I previously had multiple daily seizures. My digestive problems such as constipation and bloating have also resolved.
My general health however is not optimum, I follow a paleo style diet and do not eat any processed foods or added sugars yet I still suffer with low Vit D and ferritin (with normal haemoglobin) levels despite taking supplements. I also suffer with acne and fatigue.
I really believe that the root of my issues could be Celiacs disease. Although I follow a gluten free diet I share a comunal kitchen and cross contamination is likely.
Should I just assume I have Celiacs and manage cross contaminations? I am aware that I need to eat gluten regularly to accurately test for Celiacs (previous blood test was negative) but I am not willing to put myself through this as my epilepsy is now so well controlled with my diet.
Is there another way I can seek a diagnosis? My GP has advised me to ‘assume I do have celiacs’ but I am left wondering about my long term health.
There are several serologic (blood) tests available that screen for celiac disease antibodies, but the most commonly used is called a tTG-IgA test. … If blood test results suggest celiac disease, your physician will recommend a biopsy of your small intestine to confirm the diagnosis.
In my opinion. You should keep on your gluten free diet as it seems from history..related to your symptoms..it is easy to avoid gluten and products containing it is known..you can get vitamins from supplements or other gluten free foods. ..You can fight a vitamin D deficiency related to gluten intolerance through food sources, supplementation and even sun exposure.
There is no 100 % test without going on gluten diet , unless you consider an intestinal biopsy , in my opinion you have celiac disease there is no need to investigate more
Do the TTG test or whats called tissue transglutaminase test, a diagnostic test for coeliac disease…
ttg test will give only a rough idea and will not confirm the diagnosis.
go for gastrointestinal endoscopic biopsy to confirm.